Tuesday May 23, 2023
Season 1 Ep. 4 | The Healing Power of Friendship
Friendship heals broken hearts. And it's the best part about engaging in rare disease advocacy. If you open yourself up to the possibility, you can develop some meaningful friendships with those who understand you.
If you've recently started following my work, I can't thank you enough for listening to this podcast. This last decade of my career has exceeded my wildest expectations, and I am honored to produce content for this community.
But for those of you who are my friends in the community, those I met on social media or at a conference and have befriended, I'm just going to say it...
Thank you for accepting me as I am.
My friends in this community encourage me to keep doing what I'm doing. Not because of what you've done for me. But for who you are.
You're my friend.
Medical Nutrition Equity Act
I mention the Medical Nutrition Equity Act (MNEA) in a promo that runs during this episode. Here is a link with more information about that bill:
Patients & Providers For Medical Nutrition Equity (PPMNE)
You can get more info about the MNEA on this site, and if you're in the metabolic disorders community you can share your story here as well. Great info here that help with talking points when advocating to legislators.
Even if you're not in the metabolic disorders community, we could use your help. Please contact your legislators today and ask them to co-sponsor the Medical Nutrition Equity Act.
About Never Give Up: A Rare Disease Podcast
This is a storytelling podcast. I'm not interviewing guests or telling news that affects our community. Other podcasts do that extremely well. I just want to tell you some stories. Stories about hope. Perseverance. Self-worth. Self-care. Stories that hopefully inspire you to keep going. And to never, never, never give up.
Contact Kevin Alexander
Website: PKUJournal.com
Instagram: @kevinalexander_pku
Facebook: @pkujournal
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