Season 1 Ep. 10 | Accepting Your Rare Disease Life

Acceptance... It's the foundation of mental health. Learning to be OK with what you have and not focusing on what you've lost.

But that's hard. Very hard.

Everyone in the rare disease community lives an unconventional life. Some of us grow up and only know life with our rare disease. Others receive a diagnosis later in life, and they know a life before and a life after that experience. But we all are presented with a life we didn't ask for, and sometimes struggle to accept.

This final episode of Season 1 is about my journey of acceptance... Learning to accept that my original dream in life - military service - was not possible because of my rare disease.

But my journey has taught me that the importance of perspective. I may not have the life I originally wanted, but I am learning to accept the life that I have.

And it is beautiful.

About Never Give Up: A Rare Disease Podcast

This is a storytelling podcast. I'm not interviewing guests or telling news that affects our community. Other podcasts do that extremely well. I just want to tell you some stories. Stories about hope. Perseverance. Self-worth. Self-care. Stories that hopefully inspire you to keep going. And to never, never, never give up.

Contact Kevin Alexander

Website: PKUJournal.com

Instagram: @kevinalexander_pku

Facebook: @pkujournal

Email: kevinalexander@pkujournal.com